Written by MommyThis week has been exceptionally good!! She has been in good spirits all week and appears to be a normal active 3 year old with thinning hair 
. She and Cooper have played well together all week and even though she is tired and poops out rather quickly around lunch time she is still happy and a joy to be with.
We went to the Urologist yesterday to check on her stones. No news of moving or improvement. After an X-Ray and an ultrasound they appear to be located in the same place. Next week she will go for another CAT scan to determine where they are next week and give the doctors a better idea of how to proceed. They are going to run blood work to see if the stones are by chance not caused by the chemo but rather the pituitary glands being over active (or under active I don't remember which) and possibly spilling too much calcium into her system creating the stones. She followed this up with "But this is very unlikely. It is like looking for a zebra on a horse farm." And I said "Oh, if you only knew how many times we've been told THAT over the past few months. Now I feel like that is just a red flag for yep this is what it is." But anyway I don't know which one is supposed to be worse. Side effect from chemo OR caused by the pituitary glands? ViviAnne LOVED the ultrasound. She just lied there and stared at the screen like "What is this weird movie?" And of course the Nurse Practitioner went on and on at how cute she is. I tend to agree. Her cheeks are chubby from this round of steroids and they are too cute!!
Just wanted everyone to know we are proceeding along nicely this week. She woke me up 2-3 times a night this week so I never had the chance to fear the worse. I saw her every couple of hours!!
Thank you all for all your love and prayers. It has been truly amazing and is really a big help in keeping our spirits up. We are praying for each of you as well. Last night during bed time prayers ViviAnne said "and thank you for no boo boos and thank you for everybody...." it was really sweet. (And if you know how she actually says 'everybody' you know how sweet this is for sure.)
. She and Cooper have played well together all week and even though she is tired and poops out rather quickly around lunch time she is still happy and a joy to be with.We went to the Urologist yesterday to check on her stones. No news of moving or improvement. After an X-Ray and an ultrasound they appear to be located in the same place. Next week she will go for another CAT scan to determine where they are next week and give the doctors a better idea of how to proceed. They are going to run blood work to see if the stones are by chance not caused by the chemo but rather the pituitary glands being over active (or under active I don't remember which) and possibly spilling too much calcium into her system creating the stones. She followed this up with "But this is very unlikely. It is like looking for a zebra on a horse farm." And I said "Oh, if you only knew how many times we've been told THAT over the past few months. Now I feel like that is just a red flag for yep this is what it is." But anyway I don't know which one is supposed to be worse. Side effect from chemo OR caused by the pituitary glands? ViviAnne LOVED the ultrasound. She just lied there and stared at the screen like "What is this weird movie?" And of course the Nurse Practitioner went on and on at how cute she is. I tend to agree. Her cheeks are chubby from this round of steroids and they are too cute!!
Thank you all for all your love and prayers. It has been truly amazing and is really a big help in keeping our spirits up. We are praying for each of you as well. Last night during bed time prayers ViviAnne said "and thank you for no boo boos and thank you for everybody...." it was really sweet. (And if you know how she actually says 'everybody' you know how sweet this is for sure.)
4 comments:
So glad to hear that you guys had a good week. They look so darn cute with their little backpacks. Hang in there, hopefully there are lots of good weeks ahead. My heart aches for you. You are such wonderful parents:)
yea!!!! we're thrilled to hear the fam had a good week:) the pictures of vivianne and cooper w/ their backpacks is adorable. keep the faith! jenny & eric
I am so glad to hear that it was a good week, you all deserve many of them in a row! You are constantly in my prayers. I have to say, both Vivianne and Cooper take amazing pictures!!!
Yes, we mourn our previous lives. Yes, we hate everything about this horrible disease, from what it does to our children to what it does to our families to what it does to us. As Noah and I are in the hospital where you all have been and will be again, I know our glasses are still half full and that these bumps in the road that feel like enormous mountains will eventually be easier to move. At least that is what I keep telling myself. We think about you all the time and do many, many prayers for you. We WILL dance at our children's weddings.
Love, Noah, Deborah, Brian, Marnina, Abigail, and Ethan Goldberg
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