Sorry it has been so long since our last post. I can’t believe we’ve neglected the blog for a month! Rest assured we will do our best to not let this happen again.Let’s see, where do I begin? Well, ViviAnne received her Vinchristine and Spinal Tap with Methotrexate on April 10th and did wonderfully. She was a little pissed when she woke up from the spinal tap but this has become to be expected. Her initial wake up is always the same, “Mommy, I love you. How are you? You have two eyes.” The last part she means two SETS of eyes. And then once she becomes more coherent she doesn’t remember helping to push in her meds, because that is the highlight for her getting to help push, and she becomes angry because she doesn’t remember pushing it and thinks she hasn’t done and needs to do it. Remember, a change in the routine freaks her out so her not remembering a big part of the routine and the nurses and me telling her that she did in fact do it makes her little 3 year old groggy brain flip and she gets MAD! But once this wears off she is back to her normal self, just sleepy.
She was VERY irritable on Easter and all weekend due to the steroids SO we made the most with what we had. She did get to wear her fancy dress and go to church and did an Easter Egg Hunt at Grandma’s. She was bummed the eggs were empty BUT she still had a good time. Cooper of course did great at finding the eggs because he didn’t care of they were empty or not.We have been getting along as best as we can. We have found our own rhythm in the house and it is probably different than others but that is okay. It works for us. She and Cooper are enjoying a semi-normal childhood with trips to the YMCA 3-4 times a week while I work out and a play group one day a week at Gilda’s Club with a Mother’s Day Out program at church for 3 hours one day a week as well. We just wash the crap out of their hands and it has become expected by them to wash hands A LOT!!!
With the weather getting warmer both of the kids get irritated on the days that it rains or is cold (gotta love Crazy Kentucky weather) but with temporary tattoos, movies, books, dancing and music we pass the time on bad weather days.
We did go to Orlando the week of Spring Break and went to the beach and Sea World. I will post pics and write another post just on our trip.
Hope everyone is doing well! Thanks for all the prayers, they are working.
